We can only continue with volunteers and fundraisers. In short, we need YOU!

SBHI is a charity. We rely on donations of money and time in order to survive - can you volunteer for us?


If you would like to find out more about VOLUNTEERING on our respite breaks or at one of our other events, please contact:


Louise Healy 

Respite and Recreation Manager

t: 01 457 2329

e: lhealy@sbhi.ie


If you would like to FUNDRAISE for SBHI, please contact:


Alex Valadkevich 

Fundraising Officer  

t: 01 457 2329

e: cdikker@sbhi.ie


THANK YOU so much for thinking of SBHI and we look forward to meeting you soon!

Do you live with spina bifida and/or hydrocephalus, or another disability?

We would love to feature personal stories from those living with spina bifida and/or hydrocephalus, or other disabilities so that we can show others what you have to fight for and how this HAS TO CHANGE.


If you would like to contribute in this way, please contact:

Talent Nyamakope 

Advocacy and Campaigns Officer  

t: 01 457 2329

e: tnyamakope@sbhi.ie



We are Spina Bifida Hydrocephalus Ireland (SBHI). We are the national organisation for everybody living with spina bifida and/or hydrocephalus across Ireland. The Equality Now website is the hub for our campaigning and advocacy activities. Thank you for visiting and please to get in touch if you need more assistance.


You can find out more at: www.sbhi.ie

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T: 01 457 2329

E: info@sbhi.ie

© 2018 SBHI

Reg. Charity No. 20009366