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We are Spina Bifida Hydrocephalus Ireland (SBHI). We are the national organisation for everybody living with spina bifida and/or hydrocephalus across Ireland. The Equality Now website is the hub for our campaigning and advocacy activities. Thank you for visiting and please to get in touch if you need more assistance.

 

You can find out more at: www.sbhi.ie

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Awareness Week 2019: Hannah

Updated: Jan 14


[David] On behalf of Hannah, 9:


What does living with spina bifida and/or hydrocephalus (SB/H) mean to you? (Or your child?)

'For us as Parents and for our daughter Hannah who has Spina Bifida can be difficult at times. Hannah has her limitations but she is the most bubbly, outgoing child and never lets her disability get in the way. She tries to get involved in everything in school, in the Gaa Club, in the Wheelchair Association and many more. We as parents always encourage her to take part in every even if it’s just a small way.'


If you could make people aware of 1 thing related to SB/H, what would it be?

'I think everyone needs to be aware that behind these boys/girls living with SB/H there is a person. A person feelings, a person that can give you so much joy and happiness. They need to feel included in everything that goes on in life and they will surprise you so much.'


What is your dream for the future?

'Our dream for Hannah is that she becomes the best person she can be. We hope that she will see beyond her limitations and push herself to succeed in life.'

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