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Awareness Week 2019: Frank

Frank, 48:

What does living with spina bifida and/or hydrocephalus (SB/H) mean to you?

'Mainly a positive experience but it has its difficulties mainly due to accessibility and access to services.'

If you could make people aware of 1 thing related to SB/H, what would it be?

'That no 2 people with spina bifida and/or hydrocephalus are the same.' 

What is your dream for the future? 

'My dream is to continue being a strong disability advocate and to continue delivering my disability awareness and equality training.'

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We are Spina Bifida Hydrocephalus Ireland (SBHI). We are the national organisation for everybody living with spina bifida and/or hydrocephalus across Ireland. The Equality Now website is the hub for our campaigning and advocacy activities. Thank you for visiting and please to get in touch if you need more assistance.


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