• Admin

Awareness Week 2019: Abbierose

On behalf of Abbierose, 4:

What does living with spina bifida and/or hydrocephalus (SB/H) mean to you? (Or your child?)

'Making the most of the good days and enjoying everyday as much as possible. As with spina bifida and hydrocephalus things can change so quickly.'

If you could make people aware of 1 thing related to SB/H, what would it be?

'Latex precaution is one thing I would like people to be more aware of.'

What is your dream for the future? (Or your child's?)

'More options and support and for hospital treatment plans to improve.'

26 views0 comments

Recent Posts

See All


We are Spina Bifida Hydrocephalus Ireland (SBHI). We are the national organisation for everybody living with spina bifida and/or hydrocephalus across Ireland. The Equality Now website is the hub for our campaigning and advocacy activities. Thank you for visiting and please to get in touch if you need more assistance.


You can find out more at:

  • Facebook Social Icon
  • Instagram
  • Twitter Social Icon


T: 01 457 2329


© 2018 SBHI

Reg. Charity No. 20009366