Awareness Week 2019: Abbierose
On behalf of Abbierose, 4:
What does living with spina bifida and/or hydrocephalus (SB/H) mean to you? (Or your child?)
'Making the most of the good days and enjoying everyday as much as possible. As with spina bifida and hydrocephalus things can change so quickly.'
If you could make people aware of 1 thing related to SB/H, what would it be?
'Latex precaution is one thing I would like people to be more aware of.'
What is your dream for the future? (Or your child's?)
'More options and support and for hospital treatment plans to improve.'