WHO WE ARE
Spina Bifida Hydrocephalus Ireland (SBHI) is a national disability organisation supporting over 2000 people across Ireland. Though awareness about spina bifida and hydrocephalus is often low, there are currently around 60 babies born each year with spina bifida, and 1 in 1000 pregnancies are affected by hydrocephalus.
SBHI staff are present from the beginning, guiding new parents through the initial stages, offering support throughout the lifetime of the person affected, as well as guiding the families, carers, friends, and professionals who also require their specific expertise.
SBHI supports hundreds of individuals across Ireland as they seek to live fulfilled lives with spina bifida and/or hydrocephalus.
Spina bifida is a condition which affects the spinal cord, leaving many people with significant mobility issues, continence problems, and additional concerns such as pressure sores and social effects such as the challenges of isolation and loneliness.
For those with hydrocephalus, their body is unable to drain away the fluid which we all have in our brains, this builds pressure which is usually relieved by a shunt, a rubber tube which is fitted internally and drains the fluid away into the stomach.
It is common for both spina bifida and hydrocephalus to be experienced at the same time. These are lifelong conditions and although there is no ‘cure’, there are lots of things that can be done to enable those living with spina bifida and/or hydrocephalus to overcome potential challenges.
This is what the staff at SBHI do - we deliver unique services which ensure that everybody affected receives the best support available to them. We achieve this through our team of Family Support Workers, our Respite and Recreation Team, our Education and Training work, through our Resource Centre in Clonshaugh, and our National Resource Centre in Clondalkin.
Together these professionally trained staff offer comprehensive support to everyone living with spina bifida and/or hydrocephalus across Ireland.
To find out more about SBHI, the conditions we work with, and how to get involved, please see: www.sbhi.ie